Five things to do if your child was born with Down Syndrome

Sunday of January 01, 2023

This is a blog post consisting of personal experiences, mistakes and opinions in raising my child with down syndrome. At the time of this writing, Jace is already 7 years old. Most of my notes are recollections of previous experiences.

My eldest child Jace was born with an extra chromosome 21. Raising a first child with a down syndrome is challenging both financially and psychologically. Our ob/gyn wasn't able to flag it during the check-up due to subtle indicators. Upon delivery we were basically clueless. Jace required a stomach bypass surgery due to blockage. Jace was mis-diagnosed with Hirschsprung Disease, causing him to be under ostomy care. Jace had a hole in the heart requiring, heart surgery.

Welcome 2023. Rankaru Minor Changes

Sunday of January 01, 2023

This year no more five for friday theme since over the past few months I'm too busy to put any weekly enties. The last few months or year I have been only updating single entries.

 

Year End Looking Back 2022

Saturday of December 31, 2022

Looking back on how the Year 2022 started and how it ended for our family. Life bring different trials and often we just need to be strong facing it forward. We are just hoping that life will bring us a better future.


Year 2022 thought us health out weights anything in the World

Life our life to the fullest in all its blessing and challenges...

Year ender and look back to what happened this year 2022. We can just tag it with the following titles Vaccine, Booster, Recovery, War World Order, Family, Operation, Health, Hope.

 

Sentosa NCS, Class Photo, Communion, Christmas, New Year: Five for Friday

Saturday of December 31, 2022

It has been a while since we had a company event. This is also my first team gathering event in NCS with the C2IS team. Joyce shared their class photo. She also experience her first communium this year. We had a wonderful christmas and new year. Our family is hope for the best for the upcoming 2023.


NCS Gathering in Sentosa

C2IS project team meeting in Sentosa...

Team gathering are quite rare specially during post covid.


Joyce Class Photo

Joyce school photo...

Grade 3 St. Cyr class photo, my daughter is a curious and active girl in the middle.


Joyce First Holy Communion

This month is Joyce first holy communion...

Another event in Joyce life right after going back to the Philippines.


Christmas 2022

Time of sharing and time of loving...

Christmas with the family.


New Year 2023 and New Hope

Celebrated the New Year in Singapore

I left Manila on the 31st right before the new year. Thinking about it, it was a good decision since Manila Airport communication system broke down.

 

Recovery, Heritage Report, Birthday, Abano Dinner, Team Lunch, Magnus Bride, Scarlet Nexus: Five for Friday

Friday of November 25, 2022

Kat is improving in her recovery period. I need to process the report card from heritage academy. I celebrated my birthday in Manila. We had the this Abano dinner in Powerplant. We had this team lunch, I believe it is pre-Christmas lunch for staffs under Cheng Hock. During flights I also watched other animes from Crunchy Roll such as Magnus Bride and Scarlet Nexus.


Kat's Recovery

My wife's recovery...

Slow and sure recovery. There are tough times, and times we need to just push trough.


Heritage Academy Report Card

Transition from SG to PH schools...

My daughter will be shifting schooling from Heritage Academy to St Cyr. Academy.


My Birthday

Sister Tingting and Brother Tantan...

Photo with my brother and sister. I am such an introvert that I didn't have that much connection with my siblings.


Abano Dinner

Best way to meet the family is through meals...

First time seeing all my uncles and aunties in one group.


Project Team Lunch

One of the dinner meet-up for people under Cheng Hock...

Buffet meals under the project.


Watched anime from Crunch Roll: Magnus Bride and Scarlet Nexus

Tried the free version of Crunchy Roll, watched Mganus Bride and Scarlet Nexus...

Unique animes. Unfortunately I wasn't able to finish both Anime since I felt abit bored watching them. My crunchy roll account also expired so I have no way to continue watching them.


IGN Game Review: Scarlet Nexus

The anime I'm watching actually have a game genre...