Sunday of January 01, 2023
This is a blog post consisting of personal experiences, mistakes and opinions in raising my child with down syndrome. At the time of this writing, Jace is already 7 years old. Most of my notes are recollections of previous experiences.
My eldest child Jace was born with an extra chromosome 21. Raising a first child with a down syndrome is challenging both financially and psychologically. Our ob/gyn wasn't able to flag it during the check-up due to subtle indicators. Upon delivery we were basically clueless. Jace required a stomach bypass surgery due to blockage. Jace was mis-diagnosed with Hirschsprung Disease, causing him to be under ostomy care. Jace had a hole in the heart requiring, heart surgery.
Sunday of January 01, 2023
This year no more five for friday theme since over the past few months I'm too busy to put any weekly enties. The last few months or year I have been only updating single entries.
Saturday of December 31, 2022
Looking back on how the Year 2022 started and how it ended for our family. Life bring different trials and often we just need to be strong facing it forward. We are just hoping that life will bring us a better future.
Life our life to the fullest in all its blessing and challenges...
Year ender and look back to what happened this year 2022. We can just tag it with the following titles Vaccine, Booster, Recovery, War World Order, Family, Operation, Health, Hope.
Saturday of December 31, 2022
It has been a while since we had a company event. This is also my first team gathering event in NCS with the C2IS team. Joyce shared their class photo. She also experience her first communium this year. We had a wonderful christmas and new year. Our family is hope for the best for the upcoming 2023.
C2IS project team meeting in Sentosa...
Team gathering are quite rare specially during post covid.
Joyce school photo...
Grade 3 St. Cyr class photo, my daughter is a curious and active girl in the middle.
This month is Joyce first holy communion...
Another event in Joyce life right after going back to the Philippines.
Time of sharing and time of loving...
Christmas with the family.
Celebrated the New Year in Singapore
I left Manila on the 31st right before the new year. Thinking about it, it was a good decision since Manila Airport communication system broke down.
Friday of November 25, 2022
Kat is improving in her recovery period. I need to process the report card from heritage academy. I celebrated my birthday in Manila. We had the this Abano dinner in Powerplant. We had this team lunch, I believe it is pre-Christmas lunch for staffs under Cheng Hock. During flights I also watched other animes from Crunchy Roll such as Magnus Bride and Scarlet Nexus.
My wife's recovery...
Slow and sure recovery. There are tough times, and times we need to just push trough.
Transition from SG to PH schools...
My daughter will be shifting schooling from Heritage Academy to St Cyr. Academy.
Sister Tingting and Brother Tantan...
Photo with my brother and sister. I am such an introvert that I didn't have that much connection with my siblings.
Best way to meet the family is through meals...
First time seeing all my uncles and aunties in one group.
One of the dinner meet-up for people under Cheng Hock...
Buffet meals under the project.
Tried the free version of Crunchy Roll, watched Mganus Bride and Scarlet Nexus...
Unique animes. Unfortunately I wasn't able to finish both Anime since I felt abit bored watching them. My crunchy roll account also expired so I have no way to continue watching them.
The anime I'm watching actually have a game genre...